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Post by robert101 on Oct 10, 2005 5:12:02 GMT -5
Hello folks, Well, the unexpected has happened. In just the first week of making an appointment to finally see a dentist, and of being informed of the extensive work involved, I have now lost two of my front teeth. As I'm typing this, I feel very traumatized and upset. For nearly 45 years, I had very healthy teeth with only 2 fillings. Then, I was diagnosed with stage 2 Hodgkins Lymphoma, went through the chemo and radiation, and have been currently in remission ever since. (4.5 years) That's the good news. The only problem unfortunately is the side effects that I am now just beginning to experience - mainly the near destruction of about 8 upper front teeth - with two already lost ( literally crumbled as I ate a dinner, and just a few hours ago, had what I thought was a "harmless" cookie snack ) Because there had been at the time very little details on the net that I could find that fully explained the negative consequences of radiation/chemo on a persons dental profile, I only found out AFTER the fact, when it was practically too late to reverse the progressive destruction of tooth enamel/periodontal disease. My dentist of course inquired if I were aware of the potential hazards of post-chemo/rads on my teeth. When I told her that I had not been fully informed, she just shook her head in a combination of disappointment and sympathy, and went on with the business at hand - leaving me to wonder just how helpless and desperate my plight had become At any rate, in just a few hours, I'm due to go in for another 2 fillings, with 9 more after that. Then the waiting game begins concerning the authorization of replacement crowns/root canals and God knows what else. According to my dentist, based upon prior experience, it will take from 4 to 6 weeks to hear from the Dental-Cal insurance people. They will either grant the estimated exorbitant expenses involved, or they will deny it either partly, or perhaps all of the request. In case the latter situation should transpire, I'm ready to vigorously appeal any unfavorable decision, and will plead that my health condition was completely beyond my control, and not simply due to irresponsible neglect. Meanwhile, I'm pretty bummed out right now, even downright angry as I express more of my present feelings here. GRRRRR..... I apologize for venting like this, despite the fact that there are people here who are obviously going through potentially worse problems than me. Nevertheless, I just LOATHE the thought of being put through yet another traumatic emotional wringer, when it all just seems so unfair, or at the very least, unnecessary. Sincerely, Robert101
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Post by gdentalfear on Oct 10, 2005 6:50:10 GMT -5
to the board, Robert. Really sorry to hear about the rough ride you've been having and that you weren't informed about the effects on your teeth of the chemo/ratioation therapy . I hope, your dentist can come up with a temporary fix until the insurance comes through. If you're in the US and reasonably close to a dental school, you may be able to get cheaper treatment there. If you want to check this out, click here for a list of US dental schools: www.ada.org/prof/ed/programs/search_ddsdmd_us.aspAll the best with your appointment today. And let us know how you got on. Take care. G.
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Post by letsconnect on Oct 10, 2005 9:30:11 GMT -5
I'm so sorry to hear about what happened . It would be great if people would be fully informed of the negative consequences of radiation/chemo on dental health... maybe they thought they'd avoid adding insult to injury by not telling you about it, I don't know (it may have appeared like a trivial matter at the time). On the other hand, of course this information could be presented in such a way that it doens't sound shattering, by giving concrete advice on how damage can be kept to a minimum. Whatever the case may be, it's a bummer for you . There's a short paragraph on it here, but I would suspect that people would be more likely to look up websites about cancer treatment. Might be an idea to e-mail the "big" websites in that field and tell them that a section on this topic should be added ? That way, maybe others will be able to find this information in the future, before it's too late. I hope you won't experience any problems with Dental-Cal, keeping my fingers crossed that they'll grant the estimate . It's fantastic that you've been in remission for 4.5 years . If you'd like to discuss any ideas about how to raise awareness of the radition/chemotherapy and dental health issue (and how to prevent or limit damage), I'd be happy to help out... Hope your appointment today went well !!
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Post by robert101 on Oct 11, 2005 21:53:28 GMT -5
Hello G. You wrote: Well unfortunately, nothing extra is planned in the interim besides a having 7 root canals and the same number of crowns. Until the insurance actually authorizes the work; which is estimated to be around a month away - I will be getting fillings - which to date have been 4 out of an estimated 13. Thanks for that URL I never really thought about considering treatments at a University dental school. If there should be a critical deficiency in the amount of work authorized by Dental-Cal, I will definitely give a couple of schools a call, i.e., The UCLA and USC schools -and possibly Loma Linda. ;D Thank You!! ;D Indeed my appointment went very well yesterday. Much less pain and discomfort getting fillings than the week before. Hopefully, the rest of the "easy" sessions goes just as smoothly. Sincerely, Robert101
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Post by jamesy on Oct 11, 2005 22:47:55 GMT -5
Hi Robert, Glad your visit went well. Keeping my fingers crossed for you getting your approval. Please feel free to vent anytime!
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Post by robert101 on Oct 12, 2005 4:17:26 GMT -5
Hi Letsconnect, You wrote: Oh I agree. No question about it. Unfortunately, I think what is happening here is that Oncologists consider the more "dental" aspects of the prognosis to be "not their department", and therefore somehow think they are not as obligated to inform the patient of all the possible consequences of treatments. If true, I think it's doing patients a profound disservice. If true, it would seem then that Doctors from various specialties are not connecting the dots in a timely matter, and therefore not educating the patient when it is warranted - especially when it boils down to having over 5000 rads of radiation directed towards my chest, left armpit, and worst of all, my left jaw. ( hence the destruction of the enamel and tooth loss in that very area ) I've actually done this several years ago on a couple of Lymphoma oriented websites. I had requested more information on the correlation of Chemo/Rads and the destruction of teeth. While I feel that I raised in the webmaster some awareness of the hazards of Chemo/Rads to the structural integrity of teeth, I really didn't see any updates or revisions on additional details as a result of my E-mails. In the meantime, the only warnings on possible side effects were just perfunctory advisories on visiting a dentist before having any anti-cancer treatments. To me, that just wasn't good enough to really act on. Besides, I'm the kind of a guy that is more apt to act on medical facts and not on vague, scant, or mere anecdotal evidence of what may happen to my teeth. That happens to be my greatest concern at the moment. I mean, I am are talking about thousands of dollars here. In addition, the insurance is known to cover only the more basic of services, like teeth cleaning and regular checkups. They will depending on the circumstances, authorize more work done like extractions, root canals, and prosthetic appliances. But no mention of crowns or bridge work *sigh* I happen to have a few ideas brewing, but nothing concrete yet... Thanks ...and yes, my overall prognosis has been described as excellent for a full cure. Next year will be the 5th year, in which case I will be "officially" cured ;D It went just fine - this time around anyway. ;D Robert101
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Post by letsconnect on Oct 12, 2005 6:39:30 GMT -5
Do you have medical insurance? I've heard that sometimes when medical conditions are involved, things like medicaid or other health insurance may cover the cost instead of dental insurance... might be worth finding out if that's the case (if you haven't already looked into this)? Great to hear your appointment yesterday went well !!
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Post by robert101 on Oct 12, 2005 18:16:50 GMT -5
Letsconnect wrote: Fortunately for me, I do have medical insurance. Medi-Care paid nearly all of my Chemo/Rad expenses, while my secondary insurance, Medi-Cal; paid for nearly all of the pharmacy prescriptions, which in some cases, exceeded 200 dollars a prescription. ( that was for combating the severe nausea ) However, Medi-Care does not cover any dental work whatsoever. Only the "Dental-Cal" portion of California Medi-Cal covers it. ( Thank God!!!) Of course with all the budgetary cutbacks lurking in the background, it would not be too far fetched to witness either the scaling back, or the outright elimination of Dental-Cal benefits. ( Governor "Arnold" wants to convert Medi-Cal into an HMO instead ) ...And I can just imagine every Dentist or medical Doc out there just begging to advertise their services to HMO patients. YEAH RIGHT!!! Robert101
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Post by letsconnect on Oct 12, 2005 18:48:23 GMT -5
I'm pretty sure I read somewhere that, where a medical condition causes a dental condition, some medical insurances or medicaid (can't remember which) can cover dental work, even though they don't widely advertise this... from memory, this info was related to California (but I'm not 100% sure)... I'm gonna send you a PM.
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Post by robert101 on Oct 13, 2005 19:00:43 GMT -5
Hi Letsconnect, First, I'd like to thank you for your very helpful suggestions, as well as the PM and the URL of that other website You wrote: Well, what I did was log on the MediCare/Medicaid website and went through the vast bureaucracy of webpages regarding all services that are provided, including services that are not provided. As far as dental benefits are concerned, the only exceptions they provide are if you happen to become hospitalized as the result of a dental condition, i.e., a life threatening infection. Only then will they cover expenses, or at least most of it. Otherwise, nothing related to dental work as an outpatient is covered. Nevertheless, I'm not going to really worry about it for now. I will only be concerned if there should be unexpected work done or complications like multiple extractions alongside the already planned root canals and crowns. Keeping my fingers crossed it won't come down to that. Robert101
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Post by letsconnect on Oct 14, 2005 8:48:27 GMT -5
I'm keeping my fingers crossed that they won't make too much of a fuss and pay up - let us know how things pan out !!
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Post by robert101 on Oct 15, 2005 15:32:46 GMT -5
Will Do!!! Otherwise, I'm gonna be looking like Huck Finn Once again, thanks for your support!!! Robert101
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